Workshop Calpainopatie
Dear Friends,
As you well know, from September 15 to 17, AICa3 participated in the "233rd ENMC workshop on Calpainopathies - Clinical trial readiness for Calpainopathies" at the invitation of the EUROPEAN NEURO MUSCULAR CENTRE.
It has been an interesting and instructive working table to hear so many competences confronting on a problem that we have in common. Present were researchers representing the countries of FRANCE, ITALY, SPAIN, UNITED KINGDOM, GERMANY, DENMARK, UNITED STATES, BRAZIL and JAPAN.
Different approaches provided an increasingly in-depth overview of Calpain 3 and interesting studies were presented that will take time to further investigate.
We presented to them the patients' requests that were received with sincere interest and the researchers themselves supported the importance of the associations' support in supporting research studies. In addition to AICa3, the U.S. association Cure Calpain 3 - C3 was also present.
We had a positive perception from this working table and AICa3 will be happy to collaborate, as much as possible, with all the forces in play to face a common path and achieve our goal.
We are waiting for the publication of the official REPORT of the event in order to disclose the contents.
We thank the European Neuro Muscular Centre for organizing the event and all the researchers for the work and commitment they dedicate to this disease.
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