On this page you will find many other useful links of other associations that work and fight the disease to help improve the lives not only of people with the disease, but also of their families.
Orphanet
http://www.orphanet-italia.it/
Malattie rare
https://www.salute.gov.it/malattierare
Centro nazionale malattie rare
https://www.iss.it/centro-nazionale-per-le-malattie-rare
Parent Project
https://parentproject.it/
Associazione beta sarcoglicanopatie
https://www.beta-sarcoglicanopatie.it/
Associazione mitofusina 2
https://progettomitofusina2.com/
Associazione Phelan McDermid
https://www.aisphem.it/
MDA Muscular Dystrophy Association
https://www.mda.org/